The perks of being disabled.

Because sometimes being an outsider it's not an option.

  • 30th August
    2014
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  • 30th August
    2014
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    2014
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  • 29th August
    2014
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    2014
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  • 28th August
    2014
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(SEX)ABLED: DISABILITY UNCENSORED - celebrates people with disabilities as sexual beings. This documentary increases visibility for an often ignored population by addressing stereotypes that hinder sexual growth. Viewers are introduced to a community of sexually active disabled people. Community members expose the truth by pulling back the curtain to their sexual lives.
(Sex)abled reveals that everyBODY is capable of being sexual. The documentary features participants of the discussion panel sponsored by University of California Berkeley’s Disabled Students Union called “Are Cripples Screwed?” The panel is conducted several times a year and addresses issues surrounding sex, romance and intimacy that people of all bodies can relate to.

  • 28th August
    2014
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    2014
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  • 27th August
    2014
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I’ve always had trouble with placing my mobility aids into a picture (i’ve used wheelchairs, walkers, a cane with four prongs and a regular cane nowadays). When there’s a picture coming I put my cane away because I feel —and I actually say this to people— that it makes me less pretty. Looking through some old pictures in Facebook I came through this one, which I liked a lot, eventhough I’m on it with my cane. Now I ask to myself: why is it settled that mobility aids don’t fit into regular beauty standards? Why couldn’t we change that showing that we can look good with the mobility aid and all? Why has my cane to diminish my beauty and not be just another object in the picture? Fuck beauty canons.

I’ve always had trouble with placing my mobility aids into a picture (i’ve used wheelchairs, walkers, a cane with four prongs and a regular cane nowadays). When there’s a picture coming I put my cane away because I feel —and I actually say this to people— that it makes me less pretty. Looking through some old pictures in Facebook I came through this one, which I liked a lot, eventhough I’m on it with my cane. Now I ask to myself: why is it settled that mobility aids don’t fit into regular beauty standards? Why couldn’t we change that showing that we can look good with the mobility aid and all? Why has my cane to diminish my beauty and not be just another object in the picture? Fuck beauty canons.

  • 27th August
    2014
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If anybody wondered where i’ve been…

My life resumed in two pictures:

a) As a philosophy graduate (and not anymore a student) who hasn’t found a job yet, 60% of my day goes on diverse forms of procrastination. Though I’ve started taking german as a foreign language at an institute this week.

b) I’ve been going to the gym like crazy and eating clean, so i’ve lost 22 pounds. It feels great, I’m looking better than ever, my body feels better than ever and it’s like restoring the fractured relationship I’ve always had with my physical appearance. Plus, i’ve got a girlcrush on Iggy Azalea. I’VE BEEN WORK WORK WORK WORK WORKING ON MY SH*T ;)

Hope you’re doing great, Tumblrs! Missed you :)

  • 27th August
    2014
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  • 27th August
    2014
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  • 27th August
    2014
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Hey there! gimptips redirected me to your blog to ask if you could recommend somewhere to get a nice cane that isn't for the older crowd?

Asked by: massocheicheichei

I gotta say that as unbelievable as this may sound, my canes are both for the older crowd (I’ve bought them in an orthopedics store because here in Mexico accesible options are limited). But I know you can find cool stuff online, from handcrafted walking sticks to swordcanes —if you told me something more specific I could help you with some links—. And pimping your cane the way you want to it’s always a great choice too (I have that as a project on hold, hoping to find the right graphic artist, maybe somebody who works with an airbrush). I promise I’ll post pictures of my canes soon ;)

  • 27th August
    2014
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My Parents are Dead and My Sister is Disabled

congalineofdurin:

cockismybusiness:

team—wolverine:

therealbarbielifts:

eisforedna:

On May 28th, my sister, Edna, turned 31.

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Her mental age is about three years old. She loves Winnie the Pooh, Beauty & the Beast, and Sesame Street. Even though the below picture is unconvincing. 

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Edna and “Cookie.” I think she was trying to play it cool. 

My name is Jeanie. I’m Edna’s younger sister. I’m also her guardian and caregiver. 

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That’s me on the left. (Hey, you never know. After a year of writing a blog about online dating - Jeanie Does the Internet - I’ve come to learn that there are A LOT of fools on the internet.) 

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ANYWAY, I’m not “doing the internet” anymore. I’m taking care of Edna full-time, after completing my MFA in Writing for Screen & Television at USC.

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May 16, 2014. I wanted a picture. Edna wanted breakfast.

In case you’re wondering where our parents are, they’re dead. Our mom died of breast cancer when she was just 33. 

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Us with mom before she died. (Obviously.)

As for our dad, he peaced-out around the time my mom got sick. His loss - we’re awesome. 

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Here we are being awesome at the beach. Pushing a wheelchair in the sand? Not so awesome. 

In case you’re wondering “What’s wrong?” with my sister - as a stranger once asked me on the street  -  NOTHING. Yes, Edna has a rare form of epilepsy - Lennox-Gastaut syndrome - but I don’t know if that’s anymore “wrong” than people who don’t have manners. 

Basically, Edna was born “normal,” and started having seizures as a baby. They eventually got so bad that they cut off the oxygen to her brain, causing her to be mentally disabled. Or impaired. Or intellectually disabled. Or whatever you want to call it - except “retarded,” because in 2010, President Obama signed Rosa’s Law into effect, replacing that word with “intellectually impaired.” 

Which is cool and all, but services for the disabled and the people who care for them are SEVERELY LACKING. Also, there’s a bunch of people working in taxpayer-funded positions who are supposed to help families like us, but don’t. (Big surprise, I know.) They just fill out paperwork (whenever they feel like it) with asinine statements like this: 

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YUP. I transport my sister down the stairs in her wheelchair, because that is not only safe, but TOTALLY PRACTICAL. Why doesn’t everyone in a wheelchair just take the stairs, for God’s sake? Stop being so lazy, PEOPLE WITHOUT WORKING LEGS! 

But, as it says above, Edna’s legs do work. Whether or not she wants them to, is another story. 

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Edna refusing to go inside. 

These are the stairs that I have to carry her up - by myself - on a daily basis. That is, until one of my legs break and both of us are just sitting at the bottom of the stairs, helpless. 

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For six months, I have begged - BEGGED - the State of California to help my sister, which they are required by law - The Lanterman Act specifically - to do so. But they’ve told me “these things take time” and that I “need to amend my expectations.” (That was said to me when I refused to place Edna at AN ALL-MALE CARE FACILITY. Because yes, that was an “option” that was offered to me.) 

Prior to Edna moving in with me in my one-bedroom apartment, she was living with her amazing caregiver, Gaby, back in Tucson, where we went to high school and I did my undergrad. Edna’s reppin’ the Wildcats below. 

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But back in November, Gaby also died from breast cancer. (FUCK YOU, BREAST CANCER!) This picture was taken a month before she died. She never even told me she was sick because she didn’t want me to worry. 

By the way, we were raised by our grandma. Edna and her were very close.

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She’s dead, too. Surprise.

She died when I was 20 and Edna was 21. That’s when I became Edna’s legal guardian and Gaby stepped into the picture to help me out with Edna. 

So, six months ago, after Gaby died, I moved Edna to California, where I tried to get the folks over at The Frank D. Lanterman Regional Center to help me. I’ve told them I’m worried about our safety - that one of us could get hurt on the stairs -  I’ve told them I can’t afford to pay the private babysitters $15/hour because the ones social services sent me who make $9/hour were unreliable (they didn’t show up on time or at all so I could get to school and work), untrustworthy (one of them let Edna go to the bathroom in the kitchen and then took her into the bathroom because “that what I thought I was supposed to do.”) 

But the people over at the FLRC don’t return my calls, they don’t file the paperwork on time - and the first caseworker that was assigned to us actually LAUGHED AT my sister when he came to our home to evaluate her. When I reported him to his supervisor, she told me, “That’s just [insert name of said jackass].” 

He was one of the two caseworkers that contributed to the report I mentioned above, which also included this: 

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So let me get this straight - I have to feed, bathe, dress and help Edna in the bathroom and you can’t deduce whether or not she is able to vote? What in the fuck?!

Now I realize I seem angry. And you can bet your balls I am. I’m also sad. Sad for those who don’t have family to stick up from them and who waste away God knows where, monitored by no one. Or monitored by people who physically and sexually assault them

I’m also sad for the caregivers who are SO EXHAUSTED - trying to take care of their loved ones - while also trying to take care of themselves and battling a system that is supposed to help, but does nothing of the sort. And I know a lot of people give up. They let their dreams, their marriages, their friendships slide. All while trying not to resent the very person you’re doing it all for.

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Edna wanted to sit next to me the other day while I was writing. Clearly, she’s not impressed. 

Here’s the thing: I REFUSE TO GIVE UP. I’M NOT GIVING UP ON HER OR MYSELF. I’m going to pursue my dreams while taking care of her, AND while ensuring that the people paid to do their jobs ACTUALLY do them.

That’s where you come in. I need you to help me get my story out there. Because I know I’m not alone in this. I want to connect with families who are in similar situations and also show people who have no idea what it’s like to care for someone with a disability (or even a loved one who is sick) that it can be rewarding. Super fucking hard. Exhausting. Painful. Isolating. But, rewarding. 

I’m going to get help for my sister - and others. My hope is that by sharing our story, I can bring awareness to the lack of services and help for the disabled. 

Thank you, 

Jeanie 

Facebook:  facebook.com/eisforedna

Twitter: @EisforEdna 

This made me cry

SIGNAL BOOST

STOP SCROLLING. THIS PERSON ISN’T ASKING FOR MONEY AND THIS POST WON’T MAKE YOU SAD.

This is a really uplifting and inspirational story of a family sticking by each other and making things work despite a whole lot of shit

They just want to find other people in the same position they are, for a sense of community and to feel like they aren’t alone.

I know out of all of you, some of you have followers who are living with and taking care of intellectually or emotionally disabled family members, and this lovely and unbreakable pair of sisters need to find them.

SIGNAL BOOOOOOOOOST

(Source: , via carolawesome)

  • 26th August
    2014
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deathstarforchewie:

crohns-sucks:

neecygrace:

Today’s picture for invisible illness is a personal one. This is one of about 30 notes that my friend has received since using her handicapped placard. I’m going to say this to you, have you ever seen someone get out of a car parked in a handicapped space and said to yourself “they look too young or they don’t look disabled.” I’m going to go with yes you have, because we all have at one time. I can’t remember doing it, but before I understood the difficulties of invisible illness when I was younger I probably did. Let me ask you this though, when you had that thought was it because you knew with 100% certainty that they weren’t handicapped or did you assume that because of their age and/or not seeing a cane, walker or wheelchair? All I’m asking is that we stop and think when we someone need a mobility aid, park in a handicapped space or say they are disabled that we remember this “DISABILITY HAS NOTHING TO DO WITH AGE OR APPEARNACE.” #spoonie #invisibleillness #disability #chronicillness #rheumatoidarthritis #lupus #fibromyalgia #myofascialpainsyndrome

If nothing else, this post needs to be seen around the internet more. This harassment is not okay and no one should have to deal with it on top of having an invisible illness. This is just another form of anonymous bullying to add to the internet bullying these TROLLS are capable of.
If you are healthy, please reblog.If you are sick, please reblog.If you have a disability, please reblog.If you have an invisible illness, please reblog.If you know someone with a disability, please reblog.If you are a human being, please reblog.Let’s spread the word and help those of us that may not look like it. 
Ignorance isn’t bliss, ignorance is ignorance. 

I am not looking forward to this.

deathstarforchewie:

crohns-sucks:

neecygrace:

Today’s picture for invisible illness is a personal one. This is one of about 30 notes that my friend has received since using her handicapped placard. I’m going to say this to you, have you ever seen someone get out of a car parked in a handicapped space and said to yourself “they look too young or they don’t look disabled.” I’m going to go with yes you have, because we all have at one time. I can’t remember doing it, but before I understood the difficulties of invisible illness when I was younger I probably did. Let me ask you this though, when you had that thought was it because you knew with 100% certainty that they weren’t handicapped or did you assume that because of their age and/or not seeing a cane, walker or wheelchair? All I’m asking is that we stop and think when we someone need a mobility aid, park in a handicapped space or say they are disabled that we remember this “DISABILITY HAS NOTHING TO DO WITH AGE OR APPEARNACE.” #spoonie #invisibleillness #disability #chronicillness #rheumatoidarthritis #lupus #fibromyalgia #myofascialpainsyndrome

If nothing else, this post needs to be seen around the internet more. This harassment is not okay and no one should have to deal with it on top of having an invisible illness. This is just another form of anonymous bullying to add to the internet bullying these TROLLS are capable of.

If you are healthy, please reblog.
If you are sick, please reblog.
If you have a disability, please reblog.
If you have an invisible illness, please reblog.
If you know someone with a disability, please reblog.
If you are a human being, please reblog.

Let’s spread the word and help those of us that may not look like it. 

Ignorance isn’t bliss, ignorance is ignorance. 

I am not looking forward to this.

(via justrollinon)